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Here are some links to other sites that also provide helpful information:
The NUCDF is a non-profit organization dedicated to the identification, treatment and cure of Urea Cycle Disorders.
Save Babies Through Screening Foundation
The mission of the Save Babies Through Screening Foundation is to improve the lives of children by working to prevent death and disabilities resulting from disorders detectable through newborn screening tests.
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ph: 409.735.4332
oliphint